View Full Version : Please get the word out
71RS/SS396
12-17-2013, 11:04 AM
Mods I know this probably isn't the right area for this but I put it here for the traffic.
Many of you may not know that you know Jon but you've likely seen him at many of the Optima/FM3 run events, he also operated the QA1 booth at many events this year. His little one is very ill and he could use our financial support to pay the medical expenses. I'm asking anyone that can please donate to his fund and get the word out about this. Link to where to donate http://www.gofundme.com/5suxk4
So Cal Camaro
12-17-2013, 05:40 PM
Tim, I agree, a lot of people would know Jon if they saw him...after all he was the guy walking the autocross rows at LS Fest this year sending people down for their runs...Jon's a great guy, and it would be nice for everyone to help out if they can during this time....I cut him a check today and dropped in the mail before he set up the link to donate in Tim's post above. God bless Jon and praying for Owen's speedy recovery!
71RS/SS396
12-17-2013, 06:02 PM
Tim, I agree, a lot of people would know Jon if they saw him...after all he was the guy walking the autocross rows at LS Fest this year sending people down for their runs...Jon's a great guy, and it would be nice for everyone to help out if they can during this time....I cut him a check today and dropped in the mail before he set up the link to donate in Tim's post above. God bless Jon and praying for Owen's speedy recovery!
Dan, he does a lot of the dirty work in the background at the FM3 run events that makes it possible for all of us to have a good time. I just hope everyone can find it their hearts to donate what they can even if it's only $5, every little bit helps. It's the season for giving so why not give to someone very worthy of our help.
Jon worked for us for about 3 years...he now works for FM3 and handles the
QA1 rig. He is still a good friend of mine and the people at RideTech...we are all praying for Owens recovery.
I cannot imagine being in their position. Children should not be allowed to be sick
Money seems like such a small way to help, but its all we can do and its what they need. They have insurance, but the little things like travel, motel, food, insurance deductible, and other incidental expenses can wreck a young families finances.
I know Jon appreciates your prayers and contributions. He will likely update progress on Facebook as this is the easiest for him with only his phone to work with while at the hospital.
Smittys
12-18-2013, 08:55 AM
I could not imagine what they are going through. If everyone shares the FaceBook link that will help get the word out.
Update: wednesday dec 18 Owen is still in a coma but we are seeing more responses he actually opened his eyes (not awake) a reaction but a great one. Dr puri one of his neurologist mentioned optic nueritus, but we are not sure if that was a diagnosis. The meningitis and encephalitis are both included in the ADEM. They stopped the antibiotics, he's on high doses of steroids for 72 hrs (start to finish) and now he's starting IVIG, He's also on insulin and seizure medication.
(IVIG) Intravenous immunoglobulin is a blood product administered intravenously. It contains the pooled, polyvalent, IgG (immunoglobulin (antibody) G) extracted from the plasma of over one thousand blood donors. IVIG's effects last between 2 weeks and 3 months. A long story short this is a safer more effective treatment than a full transfusion they separate all the good antibodies from all the other cells in the plasma they do not need then administer that into his body, so he can start attacking the virus instead of his brain and spinal cord.
Dr. Puri is confident Owen may wake by this weekend due to the IVIG treatment....
Thank you all for the prayers, thoughts, words and donations.
We thank you all,
Jon and Loren
KCCO
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Jon posted this up a while ago...
Update: wednesday dec 18 Owen is still in a coma but we are seeing more responses he actually opened his eyes (not awake) a reaction but a great one. Dr puri one of his neurologist mentioned optic nueritus, but we are not sure if that was a diagnosis. The meningitis and encephalitis are both included in the ADEM. They stopped the antibiotics, he's on high doses of steroids for 72 hrs (start to finish) and now he's starting IVIG, He's also on insulin and seizure medication.
(IVIG) Intravenous immunoglobulin is a blood product administered intravenously. It contains the pooled, polyvalent, IgG (immunoglobulin (antibody) G) extracted from the plasma of over one thousand blood donors. IVIG's effects last between 2 weeks and 3 months. A long story short this is a safer more effective treatment than a full transfusion they separate all the good antibodies from all the other cells in the plasma they do not need then administer that into his body, so he can start attacking the virus instead of his brain and spinal cord.
Dr. Puri is confident Owen may wake by this weekend due to the IVIG treatment....
Thank you all for the prayers, thoughts, words and donations.
We thank you all,
Jon and Loren
KCCO
I sit here ever thankful that I do not understand those big words.
I'm not scared of much, but if this were my child the rest of my world would stop.
71RS/SS396
12-19-2013, 11:35 AM
You guys are getting smoked by the lateral-g guys
71RS/SS396
12-19-2013, 04:39 PM
I just got off of the phone with Jon and he wanted me to pass along his appreciation to every single one of you that has donated so far no matter how big or small it all helps.
Now for an update on Owens condition:
The only good news is he's out of his coma, but he is totally unresponsive to light or any other stimulation. The ADEM disease he has is extremely rare and devastating, there are only 5-6 cases reported worldwide and what happens with this is the virus mimics the brain and causes the antibodies in the blood to attack the brain and brain stem. They are looking at a very long road to recovery if everything goes well. Owen will be in the hospital for a minimum of 2 months, then 2 months of rehab to relearn how to walk,talk, and other motor skills, and then 2 months of physical therapy. Loren has insurance but Jon believes they will hit the cap on it well before this is over, so they are going to have bills piling up quick and will need every penny the can get. I've had some pm me and ask about the goal on the fund me site and that it states that if the goal isn't met within the 30 days you won't be charged, what that means is you won't be charged on your card until after the 30 days unless it meets the goal before then.
71RS/SS396
12-21-2013, 03:08 PM
Ok, somehow "go fund me" made an error and changed the status to goal met which it has not. Jon and his family still need donations, so please give if you can.
71RS/SS396
12-27-2013, 02:30 PM
Jon is still in need of donations
2yellow69
01-10-2014, 10:29 AM
Any updates on Owen? I went to the "go fund me" site and the last update was 22 days ago.
71RS/SS396
01-10-2014, 02:03 PM
Any updates on Owen? I went to the "go fund me" site and the last update was 22 days ago.
I'm going to ask Jon to respond to this thread and update everyone.
Jon@bowlerperformance
01-10-2014, 02:25 PM
Hey guys and gals, I just got back from the hospital/rehab where Owen will be for the next 30-45 days.. We officially mentally have our little boy back it's now relearning all his motor skills. He is putting around in his wheel chair pretty good, wanting to race and crash. His legs are functioning but very very week he can only stand for a few seconds. All positive steps. Our neurologist team spoke with us and stated since it's such a rare disease even after he is released the want to maintain regular contact so they can study the progress...
Now as for side effects it again being so rare it's unknown he has a 80% chance of developing MS and a 30% chance of this coming back at any given time. But for now he is progressing way ahead of schedule! By the time it's all said and done he will be in the hospital for 3 months (along time) but far better then the 5-6 they had told us... Thank you all for the kind words, emails and donations it really shows how tight knit out community is
Josh@Ridetech
01-10-2014, 02:28 PM
Hey guys and gals, I just got back from the hospital/rehab where Owen will be for the next 30-45 days.. We officially mentally have our little boy back it's now relearning all his motor skills. He is putting around in his wheel chair pretty good, wanting to race and crash. His legs are functioning but very very week he can only stand for a few seconds. All positive steps. Our neurologist team spoke with us and stated since it's such a rare disease even after he is released the want to maintain regular contact so they can study the progress...
Now as for side effects it again being so rare it's unknown he has a 80% chance of developing MS and a 30% chance of this coming back at any given time. But for now he is progressing way ahead of schedule! By the time it's all said and done he will be in the hospital for 3 months (along time) but far better then the 5-6 they had told us... Thank you all for the kind words, emails and donations it really shows how tight knit out community is
Good deal man, glad to hear it!
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